Scientific News

Porto-sinusoidal vascular liver disorder (PSVD) is a rare liver condition that often leads to severe complications from portal hypertension and can reduce life expectancy.

ERN RARE-LIVER has constructed the survey “Counselling Young Adults With Liver Disease On Alcohol Use”. The survey will be open until 8 September, 2024. It consists of max. 10 pages and it will take 10 to 15 minutes to respond.

The UEG (United European Gastroenterology) is offering clinical visiting fellowships to young doctors. You can apply to visit a European centre of excellence from a given list of hosts including a number of ERN RARE-LIVER member. This programme allows fellows

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.

The Call for proposals of a program on orphan medical devices, in particular targeting paediatric patients by EU4Health is currently open and might be interesting for ERN RARE-LIVER members and partners. The grant will fund two projects over 1 up

Biliary Atresia (BA) is a rare paediatric liver disease with an estimated prevalence of 1 / 14.000-21.000 births in Europe (~ 270 cases / year). Its aetiology is still unknown but recent studies favour an aetiology through microbe- or toxin-triggered immune dysregulation in liver and bile ducts leading to obliteration and fibrosis.

Substantial advances in the diagnosis, treatment, and long-term care of children presenting paediatric liver disease mean that survival into adulthood is now the expectation rather than the exception.