ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

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CPMS 2.0: Key Updates and Important Access Information

The new CPMS (Clinical Patient Management System) 2.0 is now fully available, offering new features and improvements to enhance the user experience. ERN RARE-LIVER will also be launching the CPMS Live Case Discussion Series, starting in June 2025.

CPMS 2.0: Key Updates and Important Information Read More

SAVE THE DATE: ERN RARE-LIVER Online Members Meeting 2025

The next ERN RARE-LIVER Online Meeting will take place on 22 October 2025. An official time and information on the agenda will follow shortly. For questions and further details please contact the office.

SAVE THE DATE: ERN RARE-LIVER Online Members Meeting 2025 Read More

R-LIVER Bulletin: First Edition

ERN RARE-LIVER has released its first R-LIVER Newsletter, providing regular updates on the latest data and developments related to the ERN RARE-LIVER registry (R-LIVER). For subscriptions or further information, please contact the ERN Office.

R-LIVER Bulletin: First Edition Read More

2025 PSC Support Project and Seed Funding Awards

PSC Support is inviting applications (letters of intent initially) for funding for research proposals that address important and novel, basic or clinical research question relating to PSC, PSC-IBD and cholangiocarcinoma in line with the PSC Support Research Strategy.

2025 PSC Support Project and Seed Funding Awards Read More

ERN RARE-LIVER Workshops in 2026 - Open application process

The ERN RARE-LIVER plans to fund workshops of disease working groups and other initiatives in 2026. We want to especially encourage disease working groups to engage their members through structured workshops and meetings aimed at collaboration and discussion.

ERN RARE-LIVER Workshops in 2026 Read More

Pre-Survey on De novo AIH in paediatric and adult patients

As part of a research initiative on de novo autoimmune hepatitis in paediatric and adult transplant patients, physicians are invited to participate in a brief pre-survey. Your expertise and experience in this area is vital to this process.

Pre-Survey on De novo AIH in paediatric and adult patients Read More

Scientific News

More Scientific News

New EASL-ERN Clinical Practice Guidelines on Wilson disease

We are happy to release the updated Wilson disease guideline which is the results of EASL-ERN RARE-LIVER collaborative work with endorsement of ESPGHAN. The value of the guideline is methodology which strictly followed EASL guidelines how to write guidelines. The update introduced several novelties.

New EASL-ERN Clinical Practice Guidelines on Wilson disease Read More

Paediatric to Adult Care Transfer in Rare Liver Diseases

Key insights from the ERN RARE-LIVER workshop on healthcare transition, focused on improving the transfer from paediatric to adult care.

Paediatric to Adult Care Transfer in Rare Liver Diseases - Published in JHEP Read More

New ERN RARE-LIVER Paper on PSVD

Porto-sinusoidal vascular liver disorder (PSVD) is a rare liver condition that often leads to severe complications from portal hypertension and can reduce life expectancy.

New ERN RARE-LIVER Paper on PSVD - Journal of Hepatology Read More

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