Explore our network

On September 4–5, 2025, the consortium of the European project RiTA (Porto Sinusoidal Vascular Disease: Risk Stratification & Therapeutic Approaches) held its in-person meeting in Barcelona, bringing together researchers from multiple disciplines and representatives of patient associations.

This workshop will convene experts, patients, and stakeholders from across Europe to shape collaborative standards for transitioning rare disease care from paediatric to adult care.

Join this interactive session to gain expert-guided insights into the clinical management of complex paediatric liver cases within CPMS.

A workshop in Warsaw brought together clinicians, researchers, and patient representatives to advance the implementation of quality of life assessment for people with Primary Sclerosing Cholangitis (PSC).

The ERN RARE-LIVER Clinical Exchange Programme offers clinicians and healthcare professionals the opportunity to gain experience and share knowledge across member and partner centres, fostering collaboration and improving care for patients with rare liver diseases.

The ERN RARE-LIVER Clinical Exchange Programme offers clinicians and healthcare professionals the opportunity to gain experience and share knowledge across member and partner centres, fostering collaboration and improving care for patients with rare liver diseases.

A systematic review by ERN RARE-LIVER outlines current evidence and clinical recommendations for managing fatigue in PBC patients.

A new multicentre study evaluates the prognostic value of liver stiffness measurement in PBC, highlighting its role in predicting hepatic decompensation independently of biochemical response.

A European survey by the ERN RARE-LIVER examined how Wilson disease is managed across 58 specialist centres and highlighted areas of variability in care.

Real-world data from the ERN RARE LIVER registry highlight current practices in PBC management and reveal opportunities to optimise care for higher-risk patients.

This multicenter retrospective study evaluated infliximab in 42 patients with autoimmune hepatitis (AIH) unresponsive to standard therapies or with concurrent autoimmune diseases.

The ERN RARE-LIVER Registry has been expanded and is now available for new data entry.