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Liver transplantation: AN ERN RARE-LIVER training video

Aimed at professionals, Martina Sterneck provides an overview of the ways to manage liver transplantation, accompanied by patients who provide accounts of their journeys.

What can the ERN do for patients?

Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.

ERN RARE-LIVER statement on SARS-CoV2 booster vaccinations

The ERN RARE-LIVER PSC Working Group has launched a survey for patients to understand the level of care and monitoring that people with PSC receive.

SARS-CoV-2 in Pediatric Liver Transplant Recipients: The European Experience

2022-01-23

This letter was published in the Journal of Pediatric Gastroenterology and Nutrition. [read more]
Mobile app requirements for patients with rare liver diseases: A single center survey for the ERN RARE-LIVER

2022-01-23

Background: More patient data are needed to improve research on rare liver diseases. Mobile health apps enable an exhaustive data collection. Therefore, the European Reference Network on Hepatological diseases (ERN RARE-LIVER) intends to implement an app for patients with rare liver diseases communicating with a patient registry, but little is known about which features patients and their healthcare providers regard as being useful. [read more]
Quantification of polyreactive immunoglobulin G facilitates the diagnosis of autoimmune hepatitis.

2022-01-23

Detection of autoantibodies is crucial for the diagnosis autoimmune hepatitis (AIH). Lack of sensitivity and specificity of conventional autoantibodies complicates the diagnostic process. Lack of sensitivity and specificity of conventional autoantibodies complicates the diagnostic process for AIH. Dres. Taubert, Engel and Jaeckel, in collaboration with several colleagues from ERN rare liver and the international autoimmune hepatitis group, aimed to identify more accurate biomarkers for the diagnosis of AIH. [read more]

ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Liver transplantation: AN ERN RARE-LIVER training video

ERN RARE-LIVER statement on SARS-CoV2 booster vaccinations

PSC survey: open until 23 January

Scientific News

SARS-CoV-2 in Pediatric Liver Transplant Recipients: The European Experience

Mobile app requirements for patients with rare liver diseases: A single center survey for the ERN RARE-LIVER

Quantification of polyreactive immunoglobulin G facilitates the diagnosis of autoimmune hepatitis.