Our mission is to improve the care of rare liver disease patients throughout Europe

Information for rare liver patients regarding COVID-19

As time passes, our knowledge on COVID-19 and particular risk groups has increased. Click here for more on COVID-19 and the specific implications for rare liver patients.

Survey on COVID-19 in patients with autoimmune liver diseases (AIH, PBC and PSC)

We are calling on autoimmune liver disease (AIH, PBC and PSC) patients to help us gain more information on the particular effects of the COVID-19 pandemic. We would be most grateful if you would take the time to complete the survey.


ERN RARE-LIVER is a Europe-wide network for centres of excellence in the clinical management of rare liver disease in adults and in children. Types of diseases covered by the network currently include Autoimmune liver disease (AILD); Metabolic, Billary artresia and related disease; structural liver disease and rare liver disease in pregnancy.

Scientific News