ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

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ERN goes ESPGHAN

Meet the team in ESPGHAN, Milan, Italy

This year, ERN RARE-LIVER will again be represented with a booth at the Annual Congress of the Society for paediatric gastroenterology, hepatology and nutrition (ESPGHAN) in Milan.
Meet our Team in ESPGHAN Read More
UEG

Funding opportunity for clinical exchange

The UEG (United European Gastroenterology) is offering clinical visiting fellowships to young doctors. You can apply to visit a European centre of excellence from a given list of hosts including
Funding opportunity for clinical exchange! Read More
Reasons why to take medication regularly

Reasons why to take medication regularly

These tips are a team effort by Aida Regi Cosculluela and Dr Wiebke Papenthin, named patient representatives of the ERN RARE-LIVER Wilson working group and the ERN Youth Panel.
Reasons why to take medication regularly Read More

Scientific News

More Scientific News

Registration is open: 12th European Conference on rare diseases and orphan products

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,
Registration is open: 12th European Conference on rare diseases and orphan products Read More

3rd Wilson Aarhus Symposium 2-5 May 2024

The Wilson Aarhus 2024 symposium will be an up-to-date, evidence-based, clinically orientated symposium with distinguished international faculty. Basic, clinical and translational research work by junior investigators will also be presented.
3rd Wilson Aarhus Symposium 2-5 May 2024 Read More

New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
New CPSS Position Paper Read More

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