ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Liver transplantation: AN ERN RARE-LIVER Training video

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Liver transplantation: AN ERN RARE-LIVER training video

Aimed at professionals, Martina Sterneck provides an overview of the ways to manage liver transplantation, accompanied by patients who provide accounts of their journeys.


Nurses Webinar: 21 September 2022, 17:00 (CEST)

Our nurses team at ERN RARE-LIVER is preparing a webinar aimed at fellow nurses, including presentations and a discussion round.

VALDIG-ERN-EASL Webinar: Management of pregnant women with vascular liver disorders and portal hypertension, 11 October 2022, 17:00-18:00 CEST

Chairs:

Aurélie Plessier/ Filipe Nery

Latest press release: Acute liver inflammation (hepatitis) of unknown origin in children: an update

Unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK) were reported earlier this year. In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) conducted a thorough investigation that did not confirm the alarming observation from the UK in other European countries.

New EASL Clinical Practice Guidelines on Sclerosing Cholangitis

We would like to draw your attention to the new EASL Clinical Practice Guideline on Sclerosing Cholangitis, which has been published in June 2022. We are grateful to all the authors and panelists, most of them from ERN centres.


Scientific News