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More NewsWorld Liver Day 2024,
19 April 2024
Your liver is an incredible organ, performing more than 500 vital functions, such as filtering toxins and aiding in digestion and metabolism. Yet, liver health is often overlooked. Each year,
Reasons why to take medication regularly
These tips are a team effort by Aida Regi Cosculluela and Dr Wiebke Papenthin, named patient representatives of the ERN RARE-LIVER Wilson working group and the ERN Youth Panel.
CPMS Achievements of the network in 2023
ERN RARE-LIVER and the CPMS helpdesk team would like to thank all ERN member centres for their commitment and effort in contributing to the Clinical Patient Management System (CPMS).
Scientific News
More Scientific NewsRegistration is open: 12th European Conference on rare diseases and orphan products
The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,
3rd Wilson Aarhus Symposium 2-5 May 2024
The Wilson Aarhus 2024 symposium will be an up-to-date, evidence-based, clinically orientated symposium with distinguished international faculty. Basic, clinical and translational research work by junior investigators will also be presented.
New CPSS Position Paper
Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.