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Liver transplantation: AN ERN RARE-LIVER training video
What can the ERN do for patients?
Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.
Nurses Webinar: 21 September 2022, 17:00 (CEST)
Our nurses team at ERN RARE-LIVER is preparing a webinar aimed at fellow nurses, including presentations and a discussion round.
VALDIG-ERN-EASL Webinar: Management of pregnant women with vascular liver disorders and portal hypertension, 11 October 2022, 17:00-18:00 CEST
Chairs:
Aurélie Plessier/ Filipe Nery
Latest press release: Acute liver inflammation (hepatitis) of unknown origin in children: an update
Unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK) were reported earlier this year. In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) conducted a thorough investigation that did not confirm the alarming observation from the UK in other European countries.
New EASL Clinical Practice Guidelines on Sclerosing Cholangitis
We would like to draw your attention to the new EASL Clinical Practice Guideline on Sclerosing Cholangitis, which has been published in June 2022. We are grateful to all the authors and panelists, most of them from ERN centres.
Scientific News
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Alpha1-antitrypsin deficiency (AATD) - associated liver disease
2022-09-26
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Results of the EU survey on the availability of age-appropriate medication for children with autoimmune liver disease (AILD)
2022-09-26
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Prevalence of COVID-19 in patients with autoimmune liver disease in Europe: a patient-oriented online survey performed by ERN RARE-LIVER
2022-09-26