News
More NewsCross-Border Healthcare & ERN High-Level Conference in Brussels
The conference brought together representatives from the European Commission, National Contact Points (NCPs), regional cross‑border initiatives, and the European Reference Networks (ERNs) to discuss current achievements and future challenges in cross-border healthcare.
Transition in Rare Diseases – Successful ERN Workshop in Ghent
On 27 and 28 March, ERN RARE‑LIVER coordinated the first ERN overarching workshop on Healthcare Transition in Rare Diseases in Ghent. The event brought together young patient representatives and healthcare providers from 22 ERNs to address the need for safe, structured and person‑centred transition from paediatric to adult care.
Rare Liver Disease Conference at the Lithuanian University of Health Sciences
ERN RARE-LIVER Coordinator Professor Ansgar W. Lohse visited the Gastroenterology Clinic at Kauno Klinikos Hospital of the Lithuanian University of Health Sciences, where experts discussed the latest advances and collaboration in the care of rare liver disease patients.
ERN RARE-LIVER Clinical Exchange Programme: Reports from London
The ERN RARE-LIVER Clinical Exchange Programme offers clinicians and healthcare professionals the opportunity to gain experience and share knowledge across member and partner centres, fostering collaboration and improving care for patients with rare liver diseases.
ERN RARE-LIVER Clinical Exchange Programme: Reports from Paris
The ERN RARE-LIVER Clinical Exchange Programme offers clinicians and healthcare professionals the opportunity to gain experience and share knowledge across member and partner centres, fostering collaboration and improving care for patients with rare liver diseases.
ERN RARE-LIVER Clinical Exchange Programme: Reports from Aachen
The ERN RARE-LIVER Clinical Exchange Programme offers clinicians and healthcare professionals the opportunity to gain experience and share knowledge across member and partner centres, fostering collaboration and improving care for patients with rare liver diseases.
Scientific News
More Scientific NewsERN RARE-LIVER Position Paper: Medical Management of Polycystic Liver Disease
A new ERN RARE-LIVER position paper presents expert consensus on the use of somatostatin analogues in the management of polycystic liver disease.
EASL Clinical Practice Guidelines on vascular diseases of the liver
A new 2025 EASL guideline outlines expert recommendations for the diagnosis and management of major vascular liver diseases, emphasising early detection, stepwise treatment strategies, and multidisciplinary care.
New ERN Position Paper: Fatigue in people with Primary Biliary Cholangitis
A systematic review by ERN RARE-LIVER outlines current evidence and clinical recommendations for managing fatigue in PBC patients.
Multicenter Study published in J Hepatol: LSM and Prognosis in PBC
A new multicentre study evaluates the prognostic value of liver stiffness measurement in PBC, highlighting its role in predicting hepatic decompensation independently of biochemical response.
Management of Wilson disease across Europe: An ERN RARE-LIVER Survey
A European survey by the ERN RARE-LIVER examined how Wilson disease is managed across 58 specialist centres and highlighted areas of variability in care.
Efficacy and safety of infliximab in patients with Autoimmune Hepatitis
This multicenter retrospective study evaluated infliximab in 42 patients with autoimmune hepatitis (AIH) unresponsive to standard therapies or with concurrent autoimmune diseases.