• It's going all right, isn't it?

    A video about parents with a young child with a liver disease. We hope it helps parents show what they are going through and find it difficult to explain to those around them. It was an afternoon full of emotions and, above all, great pride. The NLV is incredibly proud of this video, especially the parents who participated before and behind the scenes.

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Young Panel: Sorcha

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Lina

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Malou

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Silas

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Magdalini

  • Vascular liver disease - An ERN RARE-LIVER training video

  • COVID-19, Vaccination and Autoimmune Hepatitis

    The general handling of the Covid Pandemic raises many questions. For patients with Autoimmune Hepatitis, the situation is much more complicated and the questions even more specific. The following film provides answers to the most common questions.

  • General Covid update and the impact on rare liver disease patients

    Both the covid pandemic and the prospect of new vaccines have changed the general situation significantly in recent weeks. For patients with rare liver diseases, the situation is much more complicated and the questions even more specific.

  • Acute Liver Failure (ALF) - Training Video for Physicians

    Produced at the School of Hepatology of EASL and ERN RARE-LIVER

  • MDR3 deficiency: Cholestatic Liver Diseases - Training Video for Physicians and Patients

    Produced at the School of Hepatology of EASL and ERN RARE-LIVER

  • Neonatal Cholestasis - Training Video for Physicians and Patients

    Produced at the School of Hepatology of EASL and ERN RARE-LIVER

  • Primary Sclerosing Cholangitis (PSC) - Training Video for Physicians

    Produced at the School of Hepatology of EASL and ERN RARE-LIVER

  • Porto-sinusoidal vascular disease (PSVD) - Training Video for Physicians

    Produced at the School of Hepatology of EASL and ERN RARE-LIVER

  • Wilson Disease - Training Video for Physicians and Patients

    Produced at the School of Hepatology of EASL and ERN RARE-LIVER

  • Liver transplantation: AN ERN RARE-LIVER patient video

    An organ transplant is a major event in one's life.This video explains how liver transplantation works medically and what it means for the individual. While Prof. Martina Sterneck from the University Meical Centre Hamburg Eppendorf presents the topic as a professional, Stephanie and Hans tell us about life with a new liver. Thank you for trusting us and sharing your story!

  • Wilson disease - An ERN RARE-LIVER training video

    This ERN RARE-LIVER training video is intended for physicians treating patients with the hereditary copper storage disease Morbus Wilson. Uta Merle provides an overview of the pathology, diagnosis and treatment from the perspective of international experts and the patient perspective is also provided.

  • Wilson disease: An ERN RARE-LIVER patient video

    This ERN RARE-LIVER patient video on Wilson disease explains what life is like with this hereditary copper storage disease. It offers personal insights accompanied by medical statements by Prof. Dr. Uta Merle. Many thanks to Regine for telling us her story.

  • Autoimmune Hepatitis (AIH): an ERN RARE-LIVER patient video

    A first-hand account of the patient experience before, during and after diagnosis. Many thanks to the patients and their families for taking part.

  • Primary sclerosing cholangitis: An ERN RARE-LIVER patient video

  • Primary sclerosing cholangitis (PSC): diagnosis, treatment and patient care

    Aimed at professionals, Christoph Schramm provides an overview of the current state of knowledge on Primary sclerosing cholangitis (PSC), including diagnosis, treatment and patient care

  • Autoimmune Hepatitis (AIH): diagnosis, treatment and patient care, an ERN-RARE LIVER training video

    Aimed at professionals, Ansgar Lohse provides an overview of the pathology, diagnosis and treatment from the perspective of international experts.

  • Liver transplantation: AN ERN RARE-LIVER training video

    Aimed at professionals, Martina Sterneck provides an overview of the ways to manage liver transplantation, accompanied by patients who provide accounts of their journeys.

  • Update on the knowledge on COVID-19 vaccinations

    Ansgar Lohse can provide an update on the state of knowledge on the COVID-19 vaccinations. Thankfully, there is good news to share with the rare liver disease community.