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Open Letter addressed to the European Commission

As a result of and informed by the planned sessions‘ aims of the 12th European Conference on Rare Diseases and Orphan Products (ECRD 2024), an Open Letter addressed to the European Commission has been put together, urging the incoming European

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CPSS Position Paper

New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.

New CPSS Position Paper Read More
Strategy Meeting 2023

Overview Strategy Meeting 2023

On 11 and 12 December, the Management Board of ERN RARE-LIVER met in Hamburg to discuss the network’s strategy for the next 4 years, the period covered by the next grant.

Overview Strategy Meeting 2023 Read More