Other projects and cooperation
The Connecting Europe Facility (CEF)
The CEF is a key funding instrument and provides indispensable support to develop the infrastructure necessary to run a successful ERN. Thanks to CEF funding, we are technically equipped to connect health care providers for online consultation and greatly contribute towards the improvement of rare liver patient care.
https://hadea.ec.europa.eu/programmes/connecting-europe-facility_en
European association for the study of the liver (EASL)
EASL aims to spread knowledge and expertise in best practices and scientific breakthroughs in Hepatology.
https://easl.eu/
European Society of Human Genetics (ESHG)
The European Society of Human Genetics is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe.
European society for Paediatric gastroenterology hepatology and nutrition (ESPGHAN)
European joint programme on rare diseases (EJP-RD)
The EJP-RD aims to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation.
http://www.ejprarediseases.org/index.php/about/
The European Rare Disease Research Coordination and Support Action consortium (ERICA)
The European Rare Disease Research Coordination and Support Action consortium (ERICA) is a Horizon project in which all 24 European Reference Networks (ERNs) take part, is to build on the strengths of the individual ERNs and create a platform that integrates the research and innovation capacities of all ERNs.
ERICA | The European Rare Disease Research Coordination and Support Action
Other European Reference Networks (ERNs)
There are 24 ERNs that cover almost all rare diseases. To view a list of all 24 ERNs, click here.
Filière de santé des maladies rares du foie (FILFOIE)
The French Network for rare liver disease in adults and children.
https://www.filfoie.com/
Vascular Liver Disease Group (VALDIG)
An independent network of researchers with a common interest in Vascular Liver Diseases.
http://valdig.eu/
Orphanet
Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. Orphanet also maintains the Orphanet rare disease nomenclature (ORPHAcode), essential in improving the visibility of rare diseases in health and research information systems.
https://www.orpha.net/
YAEL Stiftung (YAEL foundation)
Find information here: https://yael-stiftung.de/