Clinical practice guidelines and position papers

One of the tasks set by the European Commission for the ERNs is to contribute towards advancing clinical care in rare liver diseases by developing practice guidelines and position papers. We are pleased to collaborate with EASL and ESPGHAN in this regard to ensure that our activities are mutually beneficial and that we share knowledge and experience in the most effective way.

To support this process, ERN RARE-LIVER has developed a methodology for the preparation of position papers, which is available for download below.

Methodology for  ERN  RARE-LIVER  Position Papers

Please find below a list of guidelines and position papers endorsed by ERN RARE-LIVER:

Acute Liver Failure 

Alpha-1 antitrypsin deficiency (AATD) 

Autoimmune Hepatitis (AIH) 

Cystic Liver Diseases 

  • EASL Guideline, 2022
    (Including hepatic cysts, mucinous cystic neoplasms of the liver, biliary hamartomas, polycystic liver disease, Caroli disease, Caroli syndrome and peribiliary cysts) 

Genetic Cholestatic Diseases 

Haemochromatosis 

Intrahepatic Cholangiocarcinoma 

Intrahepatic cholestasis of pregnancy; HELLP syndrome 

Primary Biliary Cholangitis (PBC) 

Sclerosing Cholangitis

Vascular Liver Diseases 

Wilson Disease 

Liver Disease in Pregnancy 

Liver Transplantation

Transition from paediatric to adult care