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ERN RARE-LIVER Youth Panel

Welcome to the Youth Panel!

Established in 2023 in Ghent, we gather online monthly to unite young people with liver diseases from various countries. Since then we have attended conferences to talk about our experiences and given our input on projects within the ERN RARE Liver working groups. We advocate for standardised healthcare across Europe. 

We focus on improving medical care for young patients and strive to make their journeys easier by supporting, connecting and accepting.

Videos

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Young Panel: Sorcha

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Lina

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Malou

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Silas

  • Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Magdalini