Aim at organising and standardising care processes, maximising patient care outcomes and improving organisation efficiency. The pathways are produced by the various Disease Working Groups of ERN RARE-LIVER together with Specialist Nurses and Patient representatives to ensure information is clear and accurate.  

1.1. Non-cirrhotic portal vein thrombosis (NCPVT) pathway

1.2. Porto-sinusoidal vascular disorder (PSVD) pathway

1.3. Polycystic liver disease (PLD) pathway

1.4. Autoimmune Hepatitis (AIH)- coming soon

Patient Pathways Structure and Aim

This diagram outlines the step-by-step processes clinicians follow in pathway development.

The patient pathways are created to aid doctors and patients make decisions in specific situations. They are based on scientific findings and proven procedures, but should also take economic aspects and individual differences into account. The pathways are not legally binding for doctors. The pathways are intended as a general guide to support doctors and patients in making informed decisions in specific situations. While they are based on scientific findings and established procedures, they should always be considered alongside individual patient circumstances, clinical judgment, and economic factors. Every case is unique, and treatment decisions should be tailored accordingly. 

Patient pathways are not legally binding for healthcare professionals and do not replace personal medical advice or professional judgment. While every effort has been made to ensure accuracy, no liability is accepted for any errors, omissions, or outcomes resulting from the use of the pathways. For personalised medical advice, patients should always consult their healthcare provider.