The current application period is open. Submit your application by completing the information below and sending it to ern.rareliver@uke.de.

The ERN RARE-LIVER plans to fund workshops of disease working groups and other initiatives between January-June 2027. In total 40.000€ are available to distribute between all accepted proposals with expected 10.000 to 20.000€ per workshop. Lived experience/patient input to workshop programme is valued. Accepted proposals will receive a budget for conducting the workshop, which will be reimbursed after the workshop in one lump sum (one invoice) to the organiser. Workshop outputs will include a short paper for dissemination channels of ERN RARE-LIVER.

1. Name of the planned workshop:
2. Name and institution of the proposer:
3. Background and justification of the proposal (no more than 200 words):
4. Draft/planned agenda for the workshop:
5. Proposed number of attendees:
6. Proposed centre/venue in city:
7. Proposed date or timeframe (between January-June 2027):
8. Additional funding planned besides ERN RARE-LIVER¹:
9. Estimated costs² with breakdown for individual cost categories:

^{1: Co-funding from public or charitable sources are welcome. However, funding from industry is not allowed.} 

^{2: Please acknowledge that the ERN RARE-LIVER can only reimburse according to the EU unit costs for eligible travel costs. Please find the calculator to determine the individual amounts per participant here. In addition, for more details please check this PDF for further information.} 

2026

• Fine tuning a roadmap for the management of portopulmonary hypertension in children: Ghent, Belgium
• Workshop on Biliary Malformation; a consensus meeting on diagnosis, therapy, research, and follow-up by the Biliary Malformation Working Group: Groningen, The Netherlands
• Alpha1-antitrypsin pediatric guidelines: Lyon, France
• Cytomegalovirus infection in patients with biliary atresia: Stockholm, Sweden
• Rare Liver Diseases and Pregnancy: Zagreb, Croatia

2025

• Quality of Life (QoL) in Primary Sclerosing Cholangitis (PSC) Workshop: Warsaw, Poland
• Harmonisation of somatostatin analoga treatment for Polycystic liver disease: Hannover, Germany
• Sex and Gender in rare liver diseases: Formigine (Modena), Italy