Introducing R-LIVER Registry

The R-LIVER registry is a secure database that collects and stores information about individuals with rare liver diseases. The diseases that are currently represented in the R-LIVER are autoimmune liver diseases, vascular and metabolic liver diseases and biliary atresia. 

The purpose of the data collected is to help researchers and healthcare providers understand patterns, improve treatments, and enhance patient care. These aims align with the ERN RARE-LIVER goal to improve care of patients with rare and complex liver diseases throughout Europe. 

 

Find more information on registry here.

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