Watch the CPMS 2.0 ERN RARE-LIVER Registration Guide on YouTube:

Watch the video on YouTube

Clinical Patient Management System (CPMS)

 

 

What is CPMS?

CPMS is a secure web-based software which aims at supporting ERNs in improving the diagnosis and treatment of rare and complex diseases across national borders of Member States in Europe. CPMS enables clinicians to enroll patients and discuss the conditions in a case-specific manner. In ERN RARE-LIVER, we continuously aim to encourage our clinicians to adopt this system in their daily clinical work and to positively benefit from the cross-border sharing of expertise. Healthcare professionals can use the CPMS to collaborate actively by virtual consultations within and across ERNs. The CPMS is not directly accessible to individual patients.

Click here to register or login.

 

Live CPMS Case Discussions

ERN RARE-LIVER is hosting Live case discussions every two months. These discussions are solely educational, where experts meet virtually to discuss a case of a patient that benefited from cross-border exchange of expertise using the platform. 

If you have an interesting case you would like to present, please do not hesitate to contact the ERN RARE-LIVER CPMS Helpdesk — who are always happy to assist and support you throughout the process.

 

Join / Login into CPMS

A dedicated guide for using the CPMS mobile app is available for direct download, while the app itself can be found on Google Play and the App Store. A separate guide covering general CPMS registration can also be downloaded. Instructional videos for both the app and CPMS registration can be found below. All resources are in English, helping international users get started quickly and easily.

Disclaimer: Full Members and Affiliated Partners can apply for regular accounts. Collaborative Partners and External Experts can apply for guest accounts. Some centres are using a minimal data sheet to summarise the parameters of their cases. To download the sheet, please see below.

Minimal Data Sheet

Mobile App Registration Guide

CPMS 2.0 Registration Guide

 

Uploading Patient Data & Consent

Although CPMS is a secure platform that complies to European data protection regulations, it is mandatory to gain informed consent from your patients before uploading their data to the platform. If there should still be concerns regarding data protection issues, you may enter anonymized patient data. Medical files usually get anonymized automatically by the system. Patient consent forms for data sharing in all European languages can be downloaded from CPMS. The filled consent forms will remain in your centre.

CPMS 2.0 Patient Consent Form

Watch the CPMS Mobile App Introduction for ERN RARE-LIVER on YouTube:

Watch the video on YouTube

CPMS 2.0 Helpdesk

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Marcial Sebode

  • Deputy Coordinator and Lead Clinical Patient Management System (CPMS)
  • Deputy coordinator
  • Autoimmune Hepatitis (AIH)

University Medical Centre Hamburg-Eppendorf, Germany

Nagham Issa

Nagham Issa

Project Manager (CPMS, R-LIVER, Stakeholder Relations & Partnerships)

  • Network Project Management

University Medical Centre Hamburg-Eppendorf, Germany

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David Lübbering

University Medical Centre Hamburg-Eppendorf, Germany

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Valeria Pérez-Campuzano

Hospital Clínic de Barcelona, Spain

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Salvatore Fasano

Hospital Beaujon, Paris, France

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Eliezer Zahra Bianco

Mater Dei Hospital Malta, Malta

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Fie Brantbjerg Tinning

Rigshospitalet, Copenhagen, Denmark

J. Schrodt

Project Manager

  • Network Project Management

University Medical Centre Hamburg-Eppendorf,
Germany