COVID-19: Information for Patients
COVID-19, Vaccination and Autoimmune Hepatitis
The general handling of the COVID-19 Pandemic raises many questions. For patients with Autoimmune Hepatitis, the situation is much more complicated and the questions even more specific.
The following film provides answers to questions such as:
- can COVID-19 or the vaccination cause or aggrevate Autoimmune Hepatitis?
- does immunosuppression make more susceptible or lead to more severe diseases?
- are additional booster vaccinations recommended in case of Autoimmune Hepatitis?
General Covid update and the impact on rare live disease patients
Both the covid pandemic and the prospect of new vaccines have changed the general situation significantly in recent weeks. For patients with rare liver diseases, the situation is much more complicated and the questions even more specific.
The following film provides answers to questions such as:
- what are the dangers of Covid for a rare liver disease patient?
- should we have moore booster vaccinations?
- what about contraindications for vaccinations?
- will we ever get rid of Covid?
August 2022
An update for patients on the Covid-19 vaccine
Now that six months have passed since the vaccination rollout, Prof. Dr. Ansgar Lohse can provide an update on the state of knowledge on the COVID-19 vaccinations. Thankfully, there is good news to share.
August 2021
Covid-19 vaccine: information for patients
Ansgar Lohse, ERN RARE-LIVER Coordinator and specialist in both Hepatology and in infectious diseases, provides a video message on the topic of vaccines against COVID-19, addressing the questions of patients with rare liver diseases, in particular for patients with immune mediated liver diseases and liver transplant patients.
January 2021
Communication toolkit for patient organisations
We are delighted to provide information to patient organisations on how they can suppport patients during this challenging time. We hope it will help especially the very small rare disease patient organisations, to communicate effectively about COVID-19 and associated issues for liver patients.
Downloads
Video message
Ansgar Lohse, Coordinator and specialist in both Hepatology and in infectious diseases, produced a video message. It directly addresses the worries and fears regarding rare liver patients and COVID-19, and it sheds light on and contextualises registry data. Many thanks to patient organisations and collaborating centres for their input.
Letter to patients in several languages
In the early stages of the COVID-19 pandemic in Europe, ERN RARE-LIVER issued a statement to rare liver patients and in case of children, their parents. Available in several languages.