Management Team
Network Coordination
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Ansgar W. Lohse
University Medical Centre Hamburg-Eppendorf, Germany
Paediatric lead
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Ekkehard Sturm
Eberhard Karls University Tübingen
Deputy coordinator
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Marcial Sebode
University Medical Centre Hamburg-Eppendorf, Germany
Network Project Management
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Aileen Franke
University Medical Centre Hamburg-Eppendorf, Germany
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Elaine Hussey
University Medical Centre Hamburg-Eppendorf, Germany
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Laura Ruhkopf
University Medical Centre Hamburg-Eppendorf, Germany
Working Packages - Leadership teams
ICT and Logistics
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Andrea De Gottardi
Ospedale Italiano di Lugano, Switzerland
-
Mike Jackson
iXscient, UK
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Christoph Schramm
University Medical Centre Hamburg-Eppendorf, Germany
-
Marcial Sebode
University Medical Centre Hamburg-Eppendorf, Germany
Training
-
Juan Carlos García-Pagán
Hospital Clínic i Provincial de Barcelona, Spain
Standardisation and Uniformity of Care
-
Matt Bolz-Johnson
EURORDIS Rare Diseases Europe
-
Piotr Milkiewicz
Medical University of Warsaw Hospital, Poland
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Aurélie Plessier
Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France
Research
-
Mike Jackson
iXscient, UK
-
Christoph Schramm
University Medical Centre Hamburg-Eppendorf, Germany
Dissemination
-
Aileen Franke
University Medical Centre Hamburg-Eppendorf, Germany
-
José Willemse
Nederlandse Leverpatienten Vereniging, Netherlands
Disease Working Groups
Autoimmune Liver Disease (AILD) Lead
-
Tom Hemming Karlsen
Oslo University Hospital, Norway
PBC
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Pietro Invernizzi
ASST Monza, Ospedale San Gerardo, Italy
AIH
-
Marcial Sebode
University Medical Centre Hamburg-Eppendorf, Germany
PSC
-
Tom Hemming Karlsen
Oslo University Hospital, Norway
Metabolic, Biliary Atresia & Related Disease Lead
-
Ekkehard Sturm
Eberhard Karls University Tübingen
Genetic Cholestatic Disease
-
Henkjan J. Verkade
University Medical Center Groningen, Netherlands
Biliary Atresia
-
Björn Fischler
Karolinska University Hospital Stockholm, Sweden
-
Claus Petersen
Hannover Medical School, Germany
AATD
-
Pavel Strnad
University Hospital Aachen, Germany
Acute Liver Failure
-
Dominic Lenz
Heidelberg University Hospital, Germany
Structural Liver Disease Lead
-
Joost P.H. Drenth
Radboud University Medical Center Nijmegen, Netherlands
PLD
-
Joost P.H. Drenth
Radboud University Medical Center Nijmegen, Netherlands
Vascular Liver Disease
-
Aurélie Plessier
Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France
Biliary Malformations
-
Joost P.H. Drenth
Radboud University Medical Center Nijmegen, Netherlands
Wilson's Disease
-
Alain Lachaux
Hôpital Femme Mère Enfant du CHU de Lyon, France
Rare Liver Tumours Lead
-
Henning Wege
University Medical Centre Hamburg-Eppendorf, Germany
Liver Disease in Pregnancy Leads
-
Michael A Heneghan
King’s College London, UK
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Catherine Williamson
King’s College London, UK
ERN RARE-LIVER Organisational Structure
