Management Team
Network Coordination
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Ansgar W. Lohse
University Medical Centre Hamburg-Eppendorf, Germany
Paediatric lead
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Ekkehard Sturm
Eberhard Karls University Tübingen
Deputy coordinator
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Marcial Sebode
University Medical Centre Hamburg-Eppendorf, Germany
Pillar Leads
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Joost P.H. Drenth
Radboud University Medical Center Nijmegen, Netherlands
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Tom Hemming Karlsen
Oslo University Hospital, Norway
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Ekkehard Sturm
Eberhard Karls University Tübingen
Representatives of the hepatology societies (EASL & ESPGHAN)
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Emmanuel Gonzales
Hôpital Bicêtre, Assistance Publique – Hôpitaux de Paris, France
ESPGHAN Representative
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Maria Reig
Hospital Clínic i Provincial de Barcelona, Spain
EASL Representative
Patient Leads
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Angela Leburgue
ALBI France
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Martine Walmsley
PSC support, UK; EASL Policy and Public Health Committee
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José Willemse
Adult Patient Lead
Nederlandse Leverpatienten Vereniging, Netherlands
Network Project Management
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Aileen Franke
University Medical Centre Hamburg-Eppendorf, Germany
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Elaine Hussey
University Medical Centre Hamburg-Eppendorf, Germany
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Laura Ruhkopf
University Medical Centre Hamburg-Eppendorf, Germany
Transversal Working Groups - Leads
Registry
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Christoph Schramm
University Medical Centre Hamburg-Eppendorf, Germany
CPMS
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Marcial Sebode
University Medical Centre Hamburg-Eppendorf, Germany
Quality of Life
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Piotr Milkiewicz
Medical University of Warsaw Hospital, Poland
Guidelines
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Juan Carlos García-Pagán
Hospital Clínic i Provincial de Barcelona, Spain
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Aurélie Plessier
Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France
Disease Working Groups - Leads
Pillar 1: Autoimmune Liver Disease (AILD)
PBC
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Pietro Invernizzi
ASST Monza, Ospedale San Gerardo, Italy
AIH
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Marcial Sebode
University Medical Centre Hamburg-Eppendorf, Germany
PSC
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Annika Bergquist
Karolinska University Hospital Stockholm, Sweden
Pillar 2: Metabolic, Biliary Atresia & Related Disease
Genetic Cholestatic Disease
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Emmanuel Gonzales
Hôpital Bicêtre, Assistance Publique – Hôpitaux de Paris, France
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Henkjan J. Verkade
University Medical Center Groningen, Netherlands
Biliary Atresia
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Björn Fischler
Karolinska University Hospital Stockholm, Sweden
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Claus Petersen
Hannover Medical School, Germany
AATD
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Pavel Strnad
University Hospital Aachen, Germany
Acute Liver Failure
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Dominic Lenz
Heidelberg University Hospital, Germany
Pillar 3: Structural Liver Disease
Polycystic liver disease
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Joost P.H. Drenth
Radboud University Medical Center Nijmegen, Netherlands
Vascular Liver Disease - VALDIG
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Aurélie Plessier
Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France
Biliary Malformations
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Joost P.H. Drenth
Radboud University Medical Center Nijmegen, Netherlands
Wilson's Disease
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Alain Lachaux
Hôpital Femme Mère Enfant du CHU de Lyon, France
Rare Liver Tumours
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Kornelius Schulze
University Medical Centre Hamburg-Eppendorf, Germany
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Maria Reig
Hospital Clínic i Provincial de Barcelona, Spain
Liver Disease in Pregnancy
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Michael A Heneghan
King’s College London, UK
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Catherine Williamson
King’s College London, UK
ERN RARE-LIVER Organisational Structure
