Management Team

Network Coordination

• 

  Ansgar W. Lohse

  University Medical Centre Hamburg-Eppendorf, Germany

Deputy coordinator

• 

  Marcial Sebode

  University Medical Centre Hamburg-Eppendorf, Germany

Pillar Leads

• 

  Joost P.H. Drenth

  Radboud University Medical Center Nijmegen, Netherlands

• 

  Tom Hemming Karlsen

  Oslo University Hospital, Norway

• 

  Ekkehard Sturm

  Eberhard Karls University Tübingen

Representatives of the hepatology societies (EASL & ESPGHAN)

• 

  Emmanuel Gonzales

  Hôpital Bicêtre, Assistance Publique – Hôpitaux de Paris, France

  ESPGHAN Representative

• 

  Marianne Hørby Jørgensen

  Rigshospitalet (RH), Copenhagen university hospital

  ESPGHAN Representative

• 

  Maria Reig

  Hospital Clínic i Provincial de Barcelona, Spain

  EASL Representative

Scientific advisor

• 

  Emma Andersson

  Karolinska University Hospital Stockholm, Sweden

  Scientific advisor

Patient Leads

• 

  Angela Leburgue

  ALBI France

• 

  José Willemse

  Adult Patient Lead

  Nederlandse Leverpatienten Vereniging, Netherlands

Network Project Management

• 

  Aileen Franke

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Elaine Hussey

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Laura Ruhkopf

  University Medical Centre Hamburg-Eppendorf, Germany

Transversal Working Groups - Leads

Registry

• 

  Christoph Schramm

  University Medical Centre Hamburg-Eppendorf, Germany

Clinical Patient Management System (CPMS)

• 

  Marcial Sebode

  University Medical Centre Hamburg-Eppendorf, Germany

Quality of Life

• 

  Tom Gevers

  Radboud University Medical Center Nijmegen

Clinical Practice Guidelines

• 

  Juan Carlos García-Pagán

  Hospital Clínic i Provincial de Barcelona, Spain

• 

  Aurélie Plessier

  Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France

Transition

• 

  Ruth De Bruyne

  Ghent University Hospital, Belgium

• 

  Deirdre Kelly

  Birmingham Children's Hospital NHS Foundation Trust, UK

Liver Disease in Pregnancy

• 

  Michael A Heneghan

  King’s College London, UK

• 

  Catherine Williamson

  King’s College London, UK

Disease Working Groups - Leads

Pillar 1: Autoimmune Liver Disease (AILD)

PBC

• 

  Frederik Nevens

  University Hospitals KULeuven

AIH

• 

  Marcial Sebode

  University Medical Centre Hamburg-Eppendorf, Germany

PSC

• 

  Annika Bergquist

  Karolinska University Hospital Stockholm, Sweden

Pillar 2: Metabolic, Biliary Atresia & Related Disease

Genetic Cholestatic Disease

• 

  Henkjan J. Verkade

  University Medical Center Groningen, Netherlands

• 

  Emmanuel Gonzales

  Hôpital Bicêtre, Assistance Publique – Hôpitaux de Paris, France

Biliary Atresia

• 

  Björn Fischler

  Karolinska University Hospital Stockholm, Sweden

• 

  Claus Petersen

  Hannover Medical School, Germany

AATD

• 

  Pavel Strnad

  University Hospital Aachen, Germany

Acute Liver Failure

• 

  Dominic Lenz

  Heidelberg University Hospital, Germany

Pillar 3: Structural Liver Disease

Polycystic liver disease

• 

  Joost P.H. Drenth

  Radboud University Medical Center Nijmegen, Netherlands

Vascular Liver Disease - VALDIG

• 

  Aurélie Plessier

  Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France

Biliary Malformations

• 

  Joost P.H. Drenth

  Radboud University Medical Center Nijmegen, Netherlands

Wilson's Disease

• 

  Alain Lachaux

  Hôpital Femme Mère Enfant du CHU de Lyon, France

Rare Liver Tumours

• 

  Kornelius Schulze

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Maria Reig

  Hospital Clínic i Provincial de Barcelona, Spain