Management Team

Network Coordination

• 

  Ansgar W. Lohse

  University Medical Centre Hamburg-Eppendorf, Germany

Paediatric lead

• 

  Marianne Hørby Jørgensen

  Rigshospitalet University of Copenhagen, Denmark

Deputy coordinator

• 

  Marcial Sebode

  University Medical Centre Hamburg-Eppendorf, Germany

Representatives of the hepatology societies (EASL & ESPGHAN)

• 

  Emmanuel Gonzales

  Hôpital Bicêtre, Assistance Publique – Hôpitaux de Paris, France

  ESPGHAN Representative

• 

  Virgínia Hernández Gea

  Hospital Clínic i Provincial de Barcelona, Spain

  EASL Representative

• 

  Marianne Hørby Jørgensen

  Rigshospitalet (RH), Copenhagen university hospital

  ESPGHAN Representative

Patient Leads

• 

  Angela Leburgue

  ALBI France

• 

  José Willemse

  Adult Patient Lead

  Nederlandse Leverpatienten Vereniging, Netherlands

Scientific advisor

• 

  Emma Andersson

  Karolinska University Hospital Stockholm, Sweden

  Scientific advisor

Network Project Management

• 

  Sabina Bernhardt

  Communication Officer

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Aileen Franke

  Project Manager

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Juliane Gaenge

  Project Manager

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Elaine Hussey

  Project Manager

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Hendrik Matthies

  Project Manager

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Laura Ruhkopf

  Secretary

  University Medical Centre Hamburg-Eppendorf, Germany

Transversal Working Groups - Leads

Registry

• 

  Christoph Schramm

  University Medical Centre Hamburg-Eppendorf, Germany

Clinical Patient Management System (CPMS)

• 

  Marcial Sebode

  University Medical Centre Hamburg-Eppendorf, Germany

Quality of Life

• 

  Tom Gevers

  Radboud University Medical Center Nijmegen

• 

  Marianne Samyn

  King’s College Hospital London, UK

• 

  José Willemse

  Adult Patient Lead

  Nederlandse Leverpatienten Vereniging, Netherlands

Clinical Practice Guidelines

• 

  Juan Carlos García-Pagán

  Hospital Clínic i Provincial de Barcelona, Spain

• 

  Aurélie Plessier

  Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France

Transition

• 

  Ruth De Bruyne

  Ghent University Hospital, Belgium

• 

  Deirdre Kelly

  Birmingham Children's Hospital NHS Foundation Trust, UK

• 

  João Madaleno

  Centro Hospitalar Universitario de Coimbra, Portugal

• 

  Zoe Mariño

  Hospital Clínic i Provincial de Barcelona, Spain

• 

  José Willemse

  Adult Patient Lead

  Nederlandse Leverpatienten Vereniging, Netherlands

Liver Disease in Pregnancy

• 

  Michael A Heneghan

  King’s College London, UK

• 

  Wiebke Papenthin

  Morbus Wilson e.V., Germany

• 

  Christina Weiler-Normann

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Catherine Williamson

  King’s College London, UK

Nurses Working Group Leads

• 

  Jen Clancy

  Royal Free London NHS Foundation Trust, Hepatology CNS, UK

• 

  Martina Fellinghauer

  Liver Care Nursing Austria, AKH Wien, Austria

• 

  Neus Llarch Alfonso

  BCLC – Hepatic Oncology Unit – Hospital Clínic, Barcelona, Spain

• 

  Denise Schäfer

  Liver Care Nursing Austria, Ordensklinikum Linz GmbH, Barmherzige Schwestern, Austria

Disease Working Groups - Leads

Primary Biliary Cholangitis (PBC)

• 

  Frederik Nevens

  University Hospitals KULeuven

• 

  Biljana Mirceska

  Save Liver Association of Patients - SLAP NGO, Macedonia

Autoimmune Hepatitis (AIH)

• 

  Marcial Sebode

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Marianne Hørby Jørgensen

  Rigshospitalet University of Copenhagen, Denmark

• 

  Bert Tomsin

  Vlaamse PBC-PSC-AIH patiëntenvereniging, Belgium

• 

  José Willemse

  Adult Patient Lead

  Nederlandse Leverpatienten Vereniging, Netherlands

Primary sclerosing cholangitis (PSC)

• 

  Annika Bergquist

  Karolinska University Hospital Stockholm, Sweden

• 

  Norman Junge

  Hannover Medical School, Germany

• 

  Martine Walmsley

  PSC support, UK; EASL Policy and Public Health Committee

Genetic Cholestatic Disease

• 

  Henkjan J. Verkade

  University Medical Center Groningen, Netherlands

• 

  Emmanuel Gonzales

  Hôpital Bicêtre, Assistance Publique – Hôpitaux de Paris, France

• 

  Verena Keitel

  Otto-von-Guericke University Magdeburg, Germany

Biliary Atresia

• 

  Björn Fischler

  Karolinska University Hospital Stockholm, Sweden

• 

  Claus Petersen

  Hannover Medical School, Germany

Alpha-1 Antitrypsin Liver Disease (AATD)

• 

  Pavel Strnad

  University Hospital Aachen, Germany

• 

  Mathias Ruiz

  CHU Lyon, France

• 

  Frank Willersinn

  Alpha-1 Plus asbl, Belgium

Acute Liver Failure

• 

  Dominic Lenz

  Heidelberg University Hospital, Germany

• 

  José Willemse

  Adult Patient Lead

  Nederlandse Leverpatienten Vereniging, Netherlands

Polycystic liver disease

• 

  Joost P.H. Drenth

  Radboud University Medical Center Nijmegen, Netherlands

• 

  Tess Harris

  PKD Charity, UK

• 

  Uwe Korst

  PKDCure, Germany

Vascular Liver Disease - VALDIG

• 

  Aurélie Plessier

  Hôpital Beaujon, Assistance Publique – Hôpitaux de Paris, France

Biliary Malformations

• 

  Janneke Bruggink

  University Medical Center Groningen, Netherlands

• 

  Joost P.H. Drenth

  Radboud University Medical Center Nijmegen, Netherlands

Wilson Disease

• 

  Wiebke Papenthin

  Morbus Wilson e.V., Germany

• 

  Thomas Sandahl

  Aarhus Universitetshospital, Denmark

• 

  Piotr Socha

  Children's Memorial Health Institute, Warsaw

Rare Liver Tumours

• 

  Johann von Felden

  University Medical Centre Hamburg-Eppendorf, Germany

• 

  Maria Reig

  Hospital Clínic i Provincial de Barcelona, Spain