Specialist Nurses

The Nurses Group within ERN RARE-LIVER brings together specialist nurses from across Europe who are dedicated to supporting patients living with rare liver diseases. Our mission is to share expertise, improve standards of care, and provide education and guidance for both patients and their families. By working collaboratively across borders, we aim to strengthen the role of nursing in rare liver care and ensure patients and families receive the best possible support throughout their journey. 

ERN RARE-LIVER serves as a forum for nurses interested in rare diseases, offering opportunities to exchange knowledge and to train specialist nurses by member centres in the specialist care and particular needs of patients with rare liver conditions. Today, the group includes more than 20 nurses specialising in both adult and paediatric liver diseases. 

All nurses in ERN and non-ERN centres are welcome to join the group. Please fill in this survey or contact the ERN office directly. 

Involvement in ERN RARE-LIVER:

• Patient Pathways development
• Transition of care
• Education and mentoring of patients with rare liver diseases
• Patient leaflets development and translation
• Nurses webinars hosting

• Representative in the Training and Education Committee

   

Collaboration with EASL Nurses and AHP Taskforce 

• EASL Congress 2026 activities:
  • Registration
  • Abstract submission
  • Scientific Programme

Our educational talks are primarily aimed for nurses and patients, but are open to all. If you would like to suggest a topic, we would be happy to hear from you. 

Nurses Webinar Proposal