Registration is open: 12th European Conference on rare diseases and orphan products


The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates, policymakers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives.

Registration is open for the next ECRD, a fully hybrid conference on 15 & 16 May 2024 online and at The Square in Brussels. A limited number of 300 places are available to join in person.

There will be a session on cross-border, highly specialised healthcare, which may be of particular interest to our network. The presenters in this session will include Prof. Ivo de Blaauw, Head of Paediatric Surgery and Ingrid Seinen, who deals with international patients, both from Radbouc University Medical Centre.
A panel discussion on this topic will follow.

Registration link