ERN RARE-LIVER Webinar Series 20 January 2026: Genetic Research and Prenatal Screening in Patients with Liver Diseases

This ERN RARE-LIVER Webinar on 20 January 2026 at 5pm (CEST) will be a joint webinar between the ERN RARE-LIVER Youth Panel, Transition working group and Pregnancy working group.

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Please use this link: https://uke-de.zoom-x.de/j/62903918563?pwd=KjvpaDAGTwa2SFigJqa52noySzaQO0.1

Speakers:

Anja Wagner, Erasmus MC: Genetic liver disease and the desire to have children

Langeza Saleh, Erasmus MC: Prenatal diagnostics for patients with liver disease: Pros and Cons.

Chairs:

Alanis Roth: ERN RARE-LIVER Youth Panel

Leona Dold: Pregnancy working group

Teresa Antonini: Transition working group

Agenda:

This is a webinar for patients. The topic originated from a question from the youth panel: “For which liver diseases is it useful to undergo genetic testing before I or my partner get pregnant?”, “What are the advantages and disadvantages of this research?”, “What are the possibilities of prenatal diagnostics for patients with liver diseases?”, “What are the pros and cons of prenatal diagnostics?”

Points/Aspects to be discussed during the Webinar:

Pros and cons of Genetic testing before or during pregnancy in patients with liver disease.
Pros and Cons of Prenatal diagnostics for patients with liver disease

Short bios:

Alanis Roth is 21 years old and comes from Frankfurt, Germany. She is studying Molecular Medicine in Tübingen, but moved to Barcelona for an Erasmus exchange year. She was di-agnosed with Wilson’s disease at the age of 9 and is under the care of Heidelberg University Hospital. Since 2023, she has been part of the ERN RARE-LIVER Youth Panel.

Leona Dold graduated from medical school in 2008 and started her clinical training in the department of hepatology and gastroenterology at the university hospital Bonn (Germany). From 2016-2017 she worked in basic research in the laboratory of experimental immunology in Cologne. After this, she returned to the department of gastroenterology at the university hospital Bonn. Since 2025, Leona works at the center for rare diseases in Bonn. Her clinical work and research focuses on rare liver disease.

Teresa Maria Antonini, MD, is graduated from Italy and completed her fellowship in hepatology and liver transplantation at Paul Brousse hospital (Villejuif, France). She worked as consultant hepatologist in Villejuif untill 2018, then she moved to Lyon. She is now the medical head of liver tranplantation program of Lyon (over than 100 liver transplantation per year) and deputy head of hepatology departement. Her hepatology department is the first (and the only one) in France to have been recognized and granted as Intitut Hospitalo-Universitaire ( IHU EVEREST : int EgratiVE RESearch in hepaTology). Her clinical and research interests include adult and pediatric liver transplantation particulary transition , and post-transplantation patient care.

Langeza Saleh, Langeza Saleh, MD PhD is a gynaecologist and academic researcher at Erasmus University Medical Center, Rotterdam.

Anja Wagner studied medicine at Erasmus University. After that, Anja trained as a clinical geneticist at the Department of Clinical Genetics at Erasmus MC. At LUMC, she conducted her PhD research on a hereditary predisposition to colon cancer (Lynch syndrome). She is still conducting scientific research in the field of hereditary colon cancer. Currently, Anja works as a clinical geneticist at the Department of Clinical Genetics at Erasmus MC , Rotterdam, the Netherlands.