Talk to Heal - Session 1: Learn about AIH at the Paediatric Hospital of Coimbra

The Hepaturix Association in Portugal is currently developing a new project and is organising several events as part of this in 2025. In addition to the Hepaturix Association, the Paediatric Hospital of Coimbra and members of our ERN RARE-LIVER Youth Panel are involved as well.

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The “Talk to Heal” project aims to address various topics related to managing specific pathologies, fostering communication between patients of different ages and experiences. The project includes sessions of approximately 2 hours, with a coffee break and opportunities for socialising. These sessions include contributions from healthcare professionals, patient testimonies and Q&A discussions. 

The first session of the Talk to Heal project took place on 15 February. The focus was on Autoimmune Hepatitis (AIH), covering topics like diet, pregnancy, and family support. Key takeaways included the importance of an anti-inflammatory diet, planning pregnancy during stable phases of AIH, and the supportive role families can play.

A summary of the questions and answers from this session has been compiled. You can find the overview in the PDF here.

These are the upcoming sessions:

  • Talk to Heal – AATD; 24 May 2025
  • Talk to Heal – Biliary Atresia; 14 June 2025
  • Talk to Heal – Post-Transplant; October 2025