Research Workshop on Primary Sclerosing Cholangitis associated with Inflammatory Bowel Disease


This workshop took place 28 – 29 August in Padua discussing the impact of IBD activity on PSC and risk of colorectal cancer, treatment specificities in PSC-IBD, IBD course before and after liver transplantation and Pouchitis and pouch failure in PSC-IBD.

Primary sclerosing cholangitis (PSC) is a rare liver disease that affects bile ducts. Most people with PSC also have inflammatory bowel disease (PSC-IBD) and they live with an increased risk of developing cancer in the colon and they must have an invasive procedure called a colonoscopy every year to look for early signs of cancer. There is a lack of evidence regarding the time-to-development of these early signs of cancer in relation to IBD features and severity.

The ERN RARE-LIVER network brought many different experts together to establish a much clearer picture of PSC-IBD by considering many aspects of on this topic including how long it takes colon cancers to develop, who is affected and the extent of disease activity, and designed research studies to collect this data where there are gaps in our knowledge.

This Networking event has received funding from the European Union’s Horizon 2020 research and innovation programme under the EJP RD COFUND-EJP N° 825575”.