New R-LIVER Studies (BCS, PSVD, ALF & TPE) are now live!

The ERN RARE-LIVER Registry has been expanded and is now available for new data entry.

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The new study modules for Budd-Chiari Syndrome (BCS), Porto-Sinusoidal Vascular Disorder (PSVD), and Acute Liver Failure (ALF), including the Therapeutic Plasma Exchange (TPE) sub-study, are now live and available for data entry in the R-LIVER registry.

Please note that these updates introduce several new sections to the registry forms. By default, these sections will be visible for all existing participants. To ensure only the relevant fields remain visible for each patient:

Navigate to the Initial Diagnosis section in the EDC.
Open the form and wait approximately 30 seconds.
The system will then automatically hide all sections not applicable to the participant’s diagnosis.