New Patient representative: Aida Regi

Aida Regi from Spain was diagnosed with Wilson’s disease with neurological symptoms at the age of 13 and now has 25 years of experience living with Wilson’s disease.
Aida is a Board member of the Spanish Association of Patients with Wilson’s disease and their relatives.
ERN RARE-LIVER is happy to have AIDA as a new patient representative on board our Wilson’s disease working group