Meeting of the Named Patient Representatives


The next meeting of the Patient Representatives has been scheduled for 19 February 2024.
The invitations have already been sent out.

It will be our first meeting of the year, with positive good news. We will have the opportunity to welcome new members, we are initiating a new cycle of 4 years of ERN RARE-LIVER after being successfully evaluated.

We propose the following agenda:
- Introduction of all participants
- Presentation of ERN organisation and plans; our accomplishments and directions, roles and missions
- EURORDIS new team and organisation presented by Matt Johnson

If you want to participate and have not yet received an invitation, please contact the office