European Economic and Social Committee in Bilbao

EESC Bilbao

At a conference in Bilbao in this October, the European Economic and Social Committee (EESC) urged the European Union to launch an action plan stepping up cooperation between national health systems.

The main goal is to provide better diagnoses, treatment and care to people with rare diseases.
Juliane Gaenge and Hendrik Matthies from the Hamburg team joined the ERN Coordinator Group meeting in Bilbao to talk about the core activities in all ERNs, the status and plans. Other topics on the agenda were Network agreements, the Expansion of disease, a Database on ERN Guidelines and guidelines for ultra-rare diagnoses as well as the cooperation with clinicians from European countries that are politically not eligible to participate in ERNs.