ePAG Lead/Board Representatives Meeting in Paris 2024

To discuss and reorganise the activities within the ERN RARE-LIVER ePAG group, those responsible leads met in Paris at the end of October. Many ideas were exchanged and concrete action steps were defined.

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On 24 and 25 October, the ERN RARE-LIVER ePAG team (Leads and Board Representatives) met to discuss upcoming projects and the structuring of the patient representative group. Key topics of discussion included encouraging participation, promoting transparent communication, strengthening interactions with the ERN office, and refining the organisation within the patient representative group. Many thanks to Wiebke Papenthin, Angela Leburgue, Francesca Scarpa and Martine Walmsley.