Dietary habits of individuals living with PSC - ERN RARE-LIVER Survey for Patients

This research is designed to explore how individuals adapt their diets due to PSC, and if applicable, due to underlying Inflammatory Bowel Disease (IBD). Additionally, we seek to identify the primary sources of information individuals with PSC rely on for dietary advice.

Back to overview

Your participation in this questionnaire is crucial for advancing our understanding of how PSC and IBD influence dietary habits. The insights gained from this study will contribute to developing better support and resources for individuals managing these conditions. The questionnaire is available in English, French, Spanish, Italian, German, Croatian, Hungarian, Czech, Polish and Swedish.

Please access the survey via this link.

Thank you for taking the time to share your experiences and contribute to this important research.