Patient organisations

The patient perspective

The patients are the core of the ERNs. Patients’ organisations are key partners and played an important role in the creation of the ERNs. They help to work towards better accessibility, clinical excellence and patient outcomes. We work with patient organizations all over Europe and welcome their perspective.
 

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Alpha1 Deutschland

Germany

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ADAAT Alpha1-France

France

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AFL +

France

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ALBI Association Pour la Lutte Contre les Maladies Inflammatoires du foie et des Voies Biliaires

France

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Alpha-1 Plus asbl

Belgium

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Alpha-1 UK Support Group

United Kingdom

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AMAF Monza Onlus

Italy

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AMFE

France

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AMMF - The Cholangiocarcinoma Charity

United Kingdom

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AMVF (Association des Malades des Vaisseaux du foie)

France

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Asociación Albi España

Spain

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Asociación Alfa 1 de España

Spain

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Asociación Española Enfermos Vasculares Hepáticos

Asociación Española Enfermos Vasculares Hepáticos

Spain

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Association Bernard Pépin pour la Maladie de Wilson

France

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Associazione Nazionale Malattia di Wilson

Italy

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BLR-Berlin

Berliner Leberring e.V.

Germany

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Children’s liver disease foundation

United Kingdom

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Deutsche Leberhilfe e.V.

Germany

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EURODIS

EU

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Finnish Kidney and Liver Association

Finland

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Hepatitis Hilfe Österreich - Plattform Gesunde Leber // hepatitis aid austria - platform healthy liver

Austria

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Hepatotransplant - Gent

Belgium

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HHT-Swiss

Switzerland

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Leverforeningen

Denmark

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Leverforeningen

Norway

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Liver Patients International

EU

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LIVErNORTH

United Kingdom

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Morbus Wilson e.V.

Germany

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NLV

Nederlandse Leverpatienten Vereniging

Netherlands

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Patiëntenvereniging Zeldzame Leverziekten

Patiëntenvereniging Zeldzame Leverziekten

Belgium

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PBC Foundation

United Kingdom

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PFIC Italy

Pfic Italia Network

Italy

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PKD Charity/ Polycystic Kidney Disease Charity

United Kingdom

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PKD_neu

PKDCure

Germany

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PoznajPSC

Poland

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proLAR

Norway

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PSC Support

United Kingdom

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PSC Sverige

Sweden

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Raríssimas

Portugal

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Save Liver Association of Patients - SLAP

North Macedonia

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Stichting Alpha-1 Nederland

Netherlands

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Verein Leberkrankes Kind

Germany

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Wilson's Disease Support Group - UK

United Kingdom

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