Hôpital Necker-Enfants Malades, Paris
France
Contact Information for physicians and patients
Unité d’Hépatologie. Hôpital Necker-Enfants malades. 149 rue de Sèvres-75015 Paris- France
Secretary : (33) 01 44 49 44 12 / 01 44 49 25 16
htpps://hopital-necker.aphp.fr
ERN Representatives
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Florence Lacaille
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Claire Mayer
ERN Team and Contact
Florence Lacaille, Pediatric Hepatologist, florence.lacaille@aphp.fr
Samira Sissaoui, Pediatric Hepatologist, samira.sissaoui@aphp.fr
Muriel Girard, Pediatric Hepatologist, muriel.girard@aphp.fr
Dominique Debray, Pediatric Hepatologist, dominique.debray@aphp.fr
Claire Mayer, Pediatric Hepatologist, claire.mayer@aphp.fr
Djamila Fezaa, Nurse Specialist, hafsa.fezaa@aphp.fr
Bénédicte Houdon, Social worker, benedicte.houdon@aphp.fr
Annick Tauliaut, Secretary, annick.tauliaut@aphp.fr
Centre information
The Hepatology-Transplantation Unit is located in Necker-Enfants malades Hospital, in the centre of Paris, the oldest paediatric hospital in the world, and a very large paediatric institution with many specialized units. This environment allows the best care for children with all types of liver diseases, with or without involvement of other organs. Liver transplantion is performed from the 1990s, as well as transplantation of the liver and another organ, such as kidney or intestine or heart, or bone marrow. Patients are referred from whole France and abroad. Collaboration within the hospital, and with other centres, is highly developed, for the children’s care and follow up, and also for clinical research and education. The patient’s education and the transition to adult units are top concerns.
The Unit participates in most protocols involving new drugs in paediatric hepatology. It takes part in many international multicentre studies, and most clinical and research Networks, and Registries in paediatric Hepatology (i.e. alpha1antitrypsine deficiency, portosystemic shunts, PFIC, etc.). It collaborates closely with the paediatric Surgical Unit for liver surgery (malformations, tumors, vascular or biliary malformation, etc.) and transplantation.