Hôpital Femme Mère Enfant du CHU de Lyon
France
Contact Information for physicians and patients
Contact: +33(0) 4 72 35 70 50
Mail: GHE.HGNP-CRMRchu-lyon.fr
Particular rare liver disease expertise of the centre
- Biliary Atresia
- Alpha-1-Antitrypsin Deficiency (A1ATD)
- Genetic Cholestatic Disease
- Alagille Syndrome
- Wilson Disease
- Autoimmune Hepatitis (AIH)
- Primary Sclerosing Cholangitis (PSC)
- Choledochal Cyst
- Cystic Liver Disease
- Vascular Liver Disease
- Rare liver tumours
- Acute Liver Failure
ERN Representatives
-
Eduardo Couchonnal-Bedoya
- Wilson Disease (WD)
Hospices Civils de Lyon, France
-
Dr. Mathias Ruiz, MD
Pediatric hepatologist, gastroenterologist
ERN Team and Contact
- Project Managers: Dr. Abdelouahed Belmalih ; Dr. Lioara Restier
- Pediatric hepatologists: Dr. Mathias Ruiz ; Dr. Eduardo Couchonnal ; Dr. Noémie Laverdure ; Dr. Barbara Rohmer
- Adult hepatologists: Prof. Jérôme Dumortier ; Dr. Olivier Guillaud ; Dr. Teresa Antonini ; Dr. Domitille Erard, Prof. Fabien Zoulim
- Pediatric surgeons: Dr. Rémi Dubois, Dr. Guillaume Rossignol, Dr. Thomas Gelas, Prof. Kayvan Mohkam
- Pediatric radiologists: Dr. Loïc Viremouneix, Dr. Nicolas Magand
- Neurologists (Wilson’s disease): Dr. Laurence Lion-Francois (pediatric), Dr. Chloé Laurencin (adult)
Contact: +33(0) 4 72 35 70 50, GHE.HGNP-CRMRchu-lyon.fr
Centre information
The Hospices Civils de Lyon (HCL) is the second largest university hospital in France, and is a reference for several rare conditions requiring high level of medical expertise. Therefore, HCL plays an educational role and conducts numerous clinical trials in the fields of rare diseases.
The Department of pediatric hepatology and gastroenterology in HCL is a constitutive reference centre for biliary atresia and genetic cholestasis, and for Wilson’s disease. It is a part of Filfoie, the French network for rare liver diseases. A specialized and multidisciplinary team constitutes this centre, and is involved in the management of rare liver diseases and liver transplantation, from childhood to adulthood.