Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.
SAVE THE DATE: Tuesday 17 December 2021 17:00 (CET) Webinar
Update on SARS-COV-2 vaccinations in rare disease patients
Background: More patient data are needed to improve research on rare liver diseases. Mobile
health apps enable an exhaustive data collection. Therefore, the European Reference Network
on Hepatological diseases (ERN RARE-LIVER) intends to implement an app for patients with rare
liver diseases communicating with a patient registry, but little is known about which features
patients and their healthcare providers regard as being useful. [read more]
Detection of autoantibodies is crucial for the diagnosis autoimmune hepatitis (AIH). Lack of sensitivity and specificity of conventional autoantibodies complicates the diagnostic process. Lack of sensitivity and specificity of conventional autoantibodies complicates the diagnostic process for AIH. Dres. Taubert, Engel and Jaeckel, in collaboration with several colleagues from ERN rare liver and the international autoimmune hepatitis group, aimed to identify more accurate biomarkers for the diagnosis of AIH.