ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

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EASL 2024

Meet our ERN RARE-LIVER team at EASL

This year, ERN RARE-LIVER will once again have a booth at the Annual Congress of EASL (the European Association for the Study of the Liver). We would be delighted to
Meet our ERN RARE-LIVER team at EASL in Milano Read More
UEG

Funding opportunity for clinical exchange

The UEG (United European Gastroenterology) is offering clinical visiting fellowships to young doctors. You can apply to visit a European centre of excellence from a given list of hosts including
Funding opportunity for clinical exchange! Read More
Reasons why to take medication regularly

Reasons why to take medication regularly

These tips are a team effort by Aida Regi Cosculluela and Dr Wiebke Papenthin, named patient representatives of the ERN RARE-LIVER Wilson working group and the ERN Youth Panel.
Reasons why to take medication regularly Read More

Scientific News

More Scientific News

Open Letter addressed to the European Commission

As a result of and informed by the planned sessions‘ aims of the 12th European Conference on Rare Diseases and Orphan Products (ECRD 2024), an Open Letter addressed to the
Open Letter addressed to the European Commission Read More

COST ACTION EURO-VALDI-NET accepted

Congratulations to Pierre-Emmanuel Rautou and colleagues for their successful COST Action application! 134 researchers from universities, hospitals, companies, NGOs and patient organizations in 27 countries put together the EURO-VALDI-NET
COST ACTION EURO-VALDI-NET accepted Read More

New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
New CPSS Position Paper Read More

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