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What can the ERN do for patients?
Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.
Latest News
News from the ERN RARE-LIVER Working Groups
What was going on in the various Working Groups of ERN RARE-LIVER in the last months?
At this year’s Members’ Meeting in Hamburg, most of the working groups gave a brief overview of their activities and what they had achieved in the past 12 months.
Covid-19 Update for people with rare liver diseases
Autumn starts with new virus variants and a new vaccine – what do patients with rare liver diseases need to bear in mind?
Open letter to the European Commission
The rare disease community comes together in calling on the EU institutions and our national governments to stand by the European Reference Networks.
