General Covid update and the impact on rare liver disease patients
What can the ERN do for patients?
Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.
New Hepatic Alveolar Echinococcosis Working Group
Alveolar Echinococcosis (AE) is a rare parasitic disease caused by the infection with the larval stage of the Echinococcus multilocularis tapeworm, known to be endemic in the northern hemisphere, mainly in central Europe and western China.
1st International Workshop on Future Therapies in Autoimmune Hepatitis
Friutfull 1st International Workshop on Future Therapies in Autoimmune Hepatitis with experts from various different scientific fields. The outstanding success of this workshop was the cooperation not only of clinicians but also of biostatisticians, patient advocates and medical officers from the FDA.
Clinical exchange program – time for a review
The European Commission in cooperation with ECORYS, one of the oldest economic research and consulting companies in Europe, had launched a Clinical Exchange Program to share knowledge and stimulate collaborations between healthcare professionals within the ERNs.