
MDR3 deficiency: Cholestatic Liver Diseases - Training Video for Physicians and Patients
What can the ERN do for patients?
Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.
Acute liver inflammation (hepatitis) of unknown origin in children: Cross-survey of the European Reference Network ERN RARE-LIVER
There has been concern regarding the frequency of unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK). In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) decided to conduct a thorough investigation. Conclusions from a survey conducted over 34 paediatric specialist liver centers from 22 European countries do not confirm the alarming observations from the UK in other European countries.
VALDIG Webinar: Vascular liver diseases and portal hypertension: 14 June 2022, 17:00 (CEST)
Topic: Liver and spleen elastography in the diagnosis and management of vascular liver diseases and portal hypertension
CPMS live discussion: 30 May 2022, 17:00 (CEST)
A CPMS case will be prepared by the CPMS helpdesk. We will invite experts who discuss the case live on the CPMS platform. Other participants will be welcome to listen in.
Scientific News
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SARS-CoV-2 in Pediatric Liver Transplant Recipients: The European Experience
2022-05-22
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Mobile app requirements for patients with rare liver diseases: A single center survey for the ERN RARE-LIVER
2022-05-22
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Quantification of polyreactive immunoglobulin G facilitates the diagnosis of autoimmune hepatitis.
2022-05-22