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Porto-sinusoidal vascular disease (PSVD) - Training Video for Physicians

Produced at the School of Hepatology of EASL and ERN RARE-LIVER

What can the ERN do for patients?

Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.

Acute liver inflammation (hepatitis) of unknown origin in children: Cross-survey of the European Reference Network ERN RARE-LIVER

There has been concern regarding the frequency of unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK). In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) decided to conduct a thorough investigation. Conclusions from a survey conducted over 34 paediatric specialist liver centers from 22 European countries do not confirm the alarming observations from the UK in other European countries.

VALDIG Webinar: Vascular liver diseases and portal hypertension: 14 June 2022, 17:00 (CEST)

Topic: Liver and spleen elastography in the diagnosis and management of vascular liver diseases and portal hypertension

A CPMS case will be prepared by the CPMS helpdesk. We will invite experts who discuss the case live on the CPMS platform. Other participants will be welcome to listen in.

SARS-CoV-2 in Pediatric Liver Transplant Recipients: The European Experience

2022-05-22

This letter was published in the Journal of Pediatric Gastroenterology and Nutrition. [read more]
Mobile app requirements for patients with rare liver diseases: A single center survey for the ERN RARE-LIVER

2022-05-22

Background: More patient data are needed to improve research on rare liver diseases. Mobile health apps enable an exhaustive data collection. Therefore, the European Reference Network on Hepatological diseases (ERN RARE-LIVER) intends to implement an app for patients with rare liver diseases communicating with a patient registry, but little is known about which features patients and their healthcare providers regard as being useful. [read more]
Quantification of polyreactive immunoglobulin G facilitates the diagnosis of autoimmune hepatitis.

2022-05-22

Detection of autoantibodies is crucial for the diagnosis autoimmune hepatitis (AIH). Lack of sensitivity and specificity of conventional autoantibodies complicates the diagnostic process. Lack of sensitivity and specificity of conventional autoantibodies complicates the diagnostic process for AIH. Dres. Taubert, Engel and Jaeckel, in collaboration with several colleagues from ERN rare liver and the international autoimmune hepatitis group, aimed to identify more accurate biomarkers for the diagnosis of AIH. [read more]

ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Porto-sinusoidal vascular disease (PSVD) - Training Video for Physicians

Acute liver inflammation (hepatitis) of unknown origin in children: Cross-survey of the European Reference Network ERN RARE-LIVER

VALDIG Webinar: Vascular liver diseases and portal hypertension: 14 June 2022, 17:00 (CEST)

CPMS live discussion: 30 May 2022, 17:00 (CEST)

Scientific News

SARS-CoV-2 in Pediatric Liver Transplant Recipients: The European Experience

Mobile app requirements for patients with rare liver diseases: A single center survey for the ERN RARE-LIVER

Quantification of polyreactive immunoglobulin G facilitates the diagnosis of autoimmune hepatitis.