Transition of care for patients with rare liver disease throughout Europe: bridging the gap, 17 to 18 March 2023 in Ghent

17 to 18 March 2023, Monasterium PoortAckere, Ghent, Belgium (
Please register by 15 November 2022.


A workshop organized by the ERN Rare Liver Transition of Care working group, funded by the Networking Support Scheme of the European Joint Programme on Rare Diseases.

Face-to-face networking event, bringing all stakeholders together, that will result in a plan of action to improve age-appropriate and transitional care in patients with rare liver disease throughout Europe. Starting from “a best model of practice” but taking into account the gaps and barriers identified by a previous survey, we aim to define the minimal but absolute requirements for transitional care.

March 17th and 18th 2023

Contact and registration
If you are interested, please send your contact details and a short motivation letter to

Travel policy and funding
A maximum of 300 euro will be covered for travel in addition to accommodation for 1 night (for patient representatives 2 nights). There will also be catering and a social programme.

Organizing Committee
ERN Rare Liver Transition of Care working group
Contact: ruth.debruyne(at)