Communication toolkit for patient organisations
We are delighted to provide information to patient organisations on how they can suppport patients during this challenging time. We hope it will help especially the very small rare disease patient organisations, to communicate effectively about COVID-19 and associated issues for liver patients.
Ansgar Lohse, Coordinator and specialist in both Hepatology and in infectious diseases, has produced a video message. It directly addresses the worries and fears regarding rare liver patients and COVID-19, and it sheds light on and contextualises registry data. Many thanks to patient organisations and collaborating centres for their input.