Covid-19 vaccine: Video message
Ansgar Lohse, ERN RARE-LIVER Coordinator and specialist in both Hepatology and in infectious diseases, provides a video message on the topic of vaccines against COVID-19, addressing the questions of patients with rare liver diseases, in particular for patients with immune mediated liver diseases and liver transplant patients.
SARS-CoV2 vaccines and other vaccinations for patients with rare liver diseases
Patients living with rare liver diseases are strongly encouraged to get vaccinated against COVID-19!
This includes patients with decompensated liver disease and any rare liver disease such as PBC, PSC, AIH, vascular liver diseases, patients waiting for liver transplant and patients post-transplant.
The vaccines appear safe. Talk to your healthcare provider if you are worried or unsure.
Communication toolkit for patient organisations
We are delighted to provide information to patient organisations on how they can suppport patients during this challenging time. We hope it will help especially the very small rare disease patient organisations, to communicate effectively about COVID-19 and associated issues for liver patients.
Ansgar Lohse, Coordinator and specialist in both Hepatology and in infectious diseases, has produced a video message. It directly addresses the worries and fears regarding rare liver patients and COVID-19, and it sheds light on and contextualises registry data. Many thanks to patient organisations and collaborating centres for their input.
Letter to patients in several languages
In the early stages of the COVID-19 pandemic in Europe, ERN RARE-LIVER issued a statement to rare liver patients and in case of children, their parents. Available in several languages.