News for health care professionals

Registration is open: 12th European Conference on rare diseases and orphan products

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,

New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.

Overview Strategy Meeting 2023

On 11 and 12 December, the Management Board of ERN RARE-LIVER met in Hamburg to discuss the network’s strategy for the next 4 years, the period covered by the next