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About
What are European Reference Networks?
What is ERN RARE-LIVER?
Types of Affiliation
Members + Partners
Governance
Working Groups - Leads
ERN RARE-LIVER ACADEMY
Patients
Understand Your Diagnosis
Patient Organisations
Patient Advocacy
Frequently Asked Questions
Virtual Consultation (CPMS)
Patient Events
R-LIVER Registry
Youth Panel
Information for Children, Teens & Young Adults
Healthcare Professionals
CPMS
File sharing
Disease Specific information
Monitoring & Evaluation
Specialist Nurses
Clinical practice guidelines & position papers
Affiliated/Scientific Publications
R-LIVER Registry
News
Latest News
Events
Scientific News
Research + Funding Opportunities
Media
Press
Newsletter
Videos
Downloads
Activities
Quality of Life
Transition of care
Other Projects and cooperation
ERN related research projects
Training & Education
Training + Information for Professionals
Webinars for Professionals
The Paediatric ERN
The Paediatric ERN
Stichting Alpha-1 Nederland
Netherlands
Link
http://www.alpha-1nederland.nl/
Information
Diseases covered:
Alpha-1-Antitrypsin Deficiency (A1ATD)
Overview
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