How to become a patient representative

If you are interesed to join the European Patient Advocacy Group (ePAG) of the ERN RARE-LIVER as a patient representative, you and your patient organisation need to fulfil certain criteria. For information on patient involvement, please contact Matt Bolz-Johnson (EURORDIS): matt.johnson@eurordis.org

Additional information and patient discussion can be found on twitter @ERN_RARE_LIVER

There are numerous patient organisations working with ERN RARE-LIVER to provide the patient perspective when carrying out its activities. Click here to view these.