How to become a patient representative

If you are interesed to join the European Patient Advocacy Group (ePAG) of the ERN RARE-LIVER as a patient representative, you and your patient organisation need to fulfil certain criteria.

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
Please have a look at the >> Terms of Reference << to learn more about the organisation and options to join the ePAG of ERN RARE-LIVER.
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Please contact the ERN office and/ or lenja.wiehe@eurordis.org from EURODIS for more information. Additional information and patient discussion can be found on twitter @ERN_RARE_LIVER.

There are numerous patient organisations working with ERN RARE-LIVER to provide the patient perspective when carrying out its activities. Click here to view these.