For Patients

News for Patients

ERN RARE-LIVER Study - Survey for people with PSC, PBC or AIH

Social determinants of health (SDOH) are the conditions in which people are born, grow up, work and age. Studies suggest that SDOH influence the course of liver disease. However, this has not yet been studied in patients with autoimmune liver disease.

Veselina has had AIH since the age of three - this is how the right treatment changed her life

Please watch our new video describing Veselinas path and experience with the right treatment of her diagnosis.

Reasons why to take medication regularly

These tips are a team effort by Aida Regi Cosculluela and Dr Wiebke Papenthin,
named patient representatives of the ERN RARE-LIVER Wilson working group and the ERN Youth Panel.

Ocaliva for PBC - FDA Advisory Panel Voting, 13 September 2024

On 13 September 2024, a meeting of the Gastrointestinal Drugs Advisory Committee took place at which supplemental New Drug Application (sNDA) 207999 S-011, for OCALIVA (obeticholic acid) was discussed. The meeting was open to the public and was streamed live on the official FDA YouTube channel.