Patients living with rare liver diseases are strongly encouraged to get vaccinated against COVID-19! This includes patients with decompensated liver disease and any rare liver disease such as PBC, PSC, AIH, vascular liver diseases, patients waiting for liver transplant and patients post-transplant. The vaccines appear safe. Talk to your healthcare provider if you are worried or unsure.

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When a patient was presented to our Hepatology Department by the Maternity Clinic in Hamburg with an unusual cause of elevated ALP, opening a panel in CPMS allowed a case discussion which helped us to confirm the origin of the extremely high elevated ALP, and to estimate the risk to the mother and the unborn child. Continue for the full case report.

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In collaboration with our patient representatives, we have produced a lay summary of the position paper, published recently as a result of the collaboration between the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) and the International Autoimmune Hepatitis Group.

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Dear Patients, During the Corona (SARS-CoV-2) pandemic, a lot of rare autoimmune liver disease patients are worried that

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There is some good news to share from the Quality of Life Working Group. They presented a poster on its

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*Information for all patients with rare liver diseases (and, in case of children, their parents)* Corona is not only

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Based on a letter of support from the ERN RARE-LIVER coordinator, the initiative shown by Piotr Milkiewicz to receive extra funding for his department has paid off.

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This is an exciting time for those interested in ɑ1-antitrypsin deficiency (AATD): a greater understanding of the science underpinning pathophysiological

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Lorenzo D’Antiga, MD Paediatric Hepatology, Gastroenterology and Transplantation Hospital Papa Giovanni XXIII, Bergamo Italy Following the outbreak in China,

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