This joint VALDIG-ERN-EASL Webinar aims to clarify some of the aforementioned points, while gathering a panel of experts in the field and promoting vivid discussion in order to improve care for these rare and somehow difficult-to-treat patients. Even though vascular liver disorders are rare reported events, liver transplantation may be considered when acute liver failure occurs, as for acute Budd-chiari syndrome, or complications of portal hypertension arise as in the context of porto-sinusoidal vascular liver disorder. Yet, few data exist considering indications and outcomes of liver transplantation in these and other rare vascular liver disorders.

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It was a great pleasure for the ERN RARE-LIVER office team to welcome all of you at this year’s Members’ Meeting in Hamburg.

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This workshop took place 28 - 29 August in Padua discussing the impact of IBD activity on PSC and risk of colorectal cancer, treatment specificities in PSC-IBD, IBD course before and after liver transplantation and Pouchitis and pouch failure in PSC-IBD.

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The INTERNATIONAL EXPLORATORY WORKSHOP supported by ERN RARE-LIVER, the Vascular Liver Diseases (VLD) Working group and VALDIG was an excellent opportunity to discuss and expand the possibilities of joint collaboration.

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Interesting talks and lectures at EASL CONGRESS in Vienna. Many of our members were involved as speakers doing presentations, talks

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Event to share knowledge across ERNs: expertise pursuing consensus

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The PLD workgroup met on June 6 in Nijmegen, the Netherlands. During the program physicians, researchers and patient associations discussed the most recent PLD guidelines, the disease's impact on HRQoL and the current management options with their limitations.

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Friutfull 1st International Workshop on Future Therapies in Autoimmune Hepatitis with experts from various different scientific fields. The outstanding success of this workshop was the cooperation not only of clinicians but also of biostatisticians, patient advocates and medical officers from the FDA.

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ERN RARE-LIVER will be present again at the ESPGHAN Congress.

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