The number of our participants is increasing from year to year, as is the number of our disease working groups, and many of our activities such as position papers and publications. ERN RARE-LIVER is on course, many of you have contributed to this success – and many more will contribute in the future.

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This year the prominent topic was patient empowerment, introducing the first cross ERN Youth Panel. There were also CPMS case presentations as well as group meetings and presentations from many different disease working groups showing how well the work is progressing.

And we were pleased to welcome our friends Valentyna Berezenko and Anna Bezpala from the Institute of Pediatrics, Obstetrics and Gynecology of the National Academy of Medical Sciences of Ukraine in Kyiv.

Let us keep the positive spirit alive this year and carry it forward together.