2020-12-03

Survey on COVID-19 in patients with autoimmune liver diseases (AIH, PBC and PSC)

Dear Patients,

During the Corona (SARS-CoV-2) pandemic, a lot of rare autoimmune liver disease patients are worried that they may be at increased risk of severe COVID-19 infection because of their disease or the medication they take. This is, however, still not clear due to the rarity of autoimmune liver diseases and the lack of evidence.

To gain a better understanding of how severely patients with an autoimmune liver disease such as autoimmune hepatitis (AIH), primary biliary cholangitis (PBC) or primary sclerosing cholangitis (PSC) are affected by the Corona (SARS-CoV-2) pandemic, ERN RARE-LIVER has recently started an anonymous online survey.

You can participate by clicking on the link below. On the website of the online survey, you can select the language on the right side of the screen under “Languages”. Please complete the survey even if you were not affected by Corona (COVID-19). The information is valuable.

With your help, we will try to answer questions about corona and rare liver diseases and thus strengthen the community of patients with autoimmune liver diseases.

Thank you very much for taking the time to support us.

Your European Reference Network on Hepatological Diseases (ERN RARE-LIVER)

Link to survey