Plasmapheresis Workshop, 22-23 November in Copenhagen

Plasmapheresis Copenhagen

On 22 and 23 November, representatives from children’s hospitals in Spain, Germany, UK and Denmark met for a networking and working meeting at Rigshospitalet, where they jointly took the first step toward establishing a protocol for the treatment of children with acute liver failure in the five European centres involved.

The meeting was attended by representatives of the two European Reference Networks (ERN) “TransplantChild” and “RARE-LIVER” as well as researchers and clinicians from the paediatric and adult fields at Rigshospitalet.

Acute liver failure in children with is such a rare disease that collaboration, data recording and research are needed across Europe, and this requires standardization of treatment and data recording.

This is explained by one of the main organizers of the working meeting and Rigshospitalet’s representative in the ERN RARE-LIVER Network, chief physician Marianne Hørby Jørgensen:
“We have done some studies in this area in Denmark, but since acute liver failure in children is an extremely rare disease, we hope that with data from all centres in the network, we can increase the volume of future studies in this area and thus help make treatment even safer for all children in Europe.