2020-01-16

Fibroscan purchase made possible

Based on a letter of support from the ERN RARE-LIVER coordinator, the initiative shown by Piotr Milkiewicz to receive extra funding for his department has paid off.

It seems the Dean of the Medical University of Warsaw appreciates the network not only as a purely clinical initiative, but also as a platform for potential research projects. They have not only assisted in the provision of a Fibroscan, the increasingly standard, but very expensive diagnostic tool, but they have also extended the funding of two experienced research nurses who will dedicate 50% of their time to ERN RARE-LIVER research activities. The tasks will be essential and will include: blood sampling for research purposes; running databases; and coordinating QoL projects, i.e. dealing with questionnaires.
This shows how strategic it can be to refer to ERN RARE-LIVER when applying for funding from your institutions. We hope this early sign of progress will encourage others to proceed in this manner. Let us learn from this strategic initiative. The long-term strategy of ERNs is indeed to increase funding from the side of the member states, or from the local hospitals themselves. Health care funding is a national or regional responsibility, not an EU responsibility – so please go and search for more funding locally. We will support you in these endeavours!