2019-12-14

ERN RARE-LIVER session @ ESPGHAN Annual meeting: 05 June 2019 in Glasgow

A session dedicated to ERN RARE-LIVER, led by Ekkehard Sturm, was held at the ESPGHAN Annual Meeting. The new ERN RARE-LIVER coordinator, Ansgar Lohse provided an overview of the status and plans of the network.

A session dedicated to ERN RARE-LIVER, led by Ekkehard Sturm, was held at the ESPGHAN Annual Meeting. The new ERN RARE-LIVER coordinator, Ansgar Lohse provided an overview of the status and plans of the network. A talk on Autoimmune hepatitis in children and ERN activities was held by Marianne Hørby Jørgensen and Deirdre Kelly. Dominic Lenz provided information on activities for Metabolic liver diseases and the cooperation with METABERN. Noémie Laverdure, Alain Lachaux and Emmanuel Gonzales gave a talk on Alpha1-Antitrypsin Deficiency in children and adults, and on a common platform to improve care in Europe.