PLD Working Group Meeting on June 6 in Nijmegen, the Netherlands


The PLD workgroup met on June 6 in Nijmegen, the Netherlands.
During the program physicians, researchers and patient associations discussed the most recent PLD guidelines, the disease’s impact on HRQoL and the current management options with their limitations.

In addition, hybrid online discussion sessions were organized in which unmet needs from a patient perspective were discussed, new research ideas were presented and action points for the PLD workgroup were formulated.

The primary action point is to create structured ‘care pathways’ for PLD patients at the first HCP presentation. This will contribute to uniform PLD care and improves patient information.