2019-12-14

ERN RARE-LIVER Members Meeting with Rare Liver Tumours Workshop: 01-03 September 2019 in Hamburg

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This Members’ Meeting took place in Hamburg, Germany on 2 and 3 September 2019. Its energetic and productive atmosphere has rung in the next phase for the ERN RARE-LIVER:

This Members’ Meeting took place in Hamburg, Germany on 2 and 3 September 2019. Its energetic and productive atmosphere has rung in the next phase for the ERN RARE-LIVER: We have now shifted from ‘transition mode’, more focused on administrative changes to ‘action mode’. Our subgroup meetings for Work Packages and Disease Working Groups allowed us to discuss the gaps and opportunities for ERN RARE-LIVER. We elected leadership teams for individual rare liver diseases and for Work Packages.
We also took the opportunity to combine a Rare Liver Tumours Workshop with the Members’ Meeting. This workshop allowed us to discuss rare liver tumours, especially the current management methods regarding diagnosis and therapy, as a basis for the ERN to consult via CPMS (Clinical Patient Management System). In addition, we defined areas of uncertainty and proposed areas for future research activities. Highly recognized experts from all over Europe have given talks and enabled us to conduct our discussions on a highly professional level.