ERN RARE-LIVER

It was a great pleasure for the ERN RARE-LIVER office team to welcome all of you at this year’s Members’ Meeting in Hamburg. The number of our participants is increasing from year to year, as is the number of our disease working groups, and many of our activities such as position papers and publications. ERN RARE-LIVER is on course, many of you have contributed to this success – and many more will contribute in the future.

This year the prominent topic was patient empowerment, introducing the first cross ERN Youth Panel. There were also CPMS case presentations as well as group meetings and presentations from many different disease working groups. And we were pleased to welcome our friends Valentyna Berezenko and Anna Bezpala from the Institute of Pediatrics, Obstetrics and Gynecology of the National Academy of Medical Sciences of Ukraine in Kyiv.

Let us keep the positive spirit alive this year and carry it forward together.

Reimbursement of travel expenses

Please make sure to save all original copies of proof of payment for costs that you would like to claim.

If you are eligible to claim costs but have not received a reimbursement form please contact the ERN RARE-LIVER office.

Please note that the deadline to hand in your travel expenses is 11 September 2023.

Here are some impressions from this years’ Members’ Meeting.