Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Malou

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In February 2023, 15 young adults, all suffering from different but rare liver diseases, met at an ERN RARE-LIVER Transition Workshop in Ghent, Belgium. Together they founded the first cross ERN Youth Panel. Their goal: to make their situation clear and to bring their unmet needs to the public.

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