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2024-02-02

Registration is open: 12th European Conference on rare diseases and orphan products

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,
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CPSS Position Paper

2024-01-18

New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
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Strategy Meeting 2023

2023-12-21

Overview Strategy Meeting 2023

On 11 and 12 December, the Management Board of ERN RARE-LIVER met in Hamburg to discuss the network’s strategy for the next 4 years, the period covered by the next
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